Hi everyone, Just a quick post to let you know how things are progressing.
I had my appointment with a Neurologist at the QE earlier this month (May) and i explained that i was getting problems with my speech slurring, losing my sight in my left eye, the usual pains , headaches,fatigue and drop attacks, balance and dizziness.
He told me that it looked like i had brain damage either through surgery ( what !!!) or through a fall i had at work back in 2001 which i went to see him about when it happened ( i cant remember seeing him , in fact i cant remember seeing anyone let alone the accident ?). Anyway, he is sending me for a EEG to see if i ma experiencing Epileptic seizures . He will be writing to my Neurosurgeon with regards to my visit to him. I guess i will know more when i get to see my Neurosurgeon in June.
Friday just gone, i was pottering around in the garden,when i felt a pop in my head, i passed out with the pain it caused and when i came round, my left eye and mouth had drooped and my tongue on the left side had gone numb. I thought it may be one of my ridiculous headaches again, so i went for a lie down. All feeling came back later that afternoon and my headache had stopped with the help of copious amounts of pain killers. I went to see my GP on Monday (yesterday) and mentioned what had happened to him. He wasn't happy with the fact i left it to see him and said i should have gone to A & E as i may have had a bleed somewhere. He advised me to go and see a optician asap as he is concerned about my sight in the left eye deteriorating. ( today i have tried to get a appointment with about seven opticians, they all say the same, " sorry, we have no appointments for today) I have give up now as i really cannot be bothered anymore.). Its just a constant battle to be seen let alone be heard by anyone. I will leave it now until i see my Neurosurgeon or get another one of those attacks.
I will go to my appointment next month, knowing exactly what the outcome will be. ( "You have had the surgery, you are now cured, don't worry about that CSF leak you have , it wont cause a problem, its normal").Anyway rant over. I will post the outcome for you all to see next month.
Take care all, until next time.
4 comments:
Hi Darren, Just thinking of you and wondering how the appointment in June went? Is everything getting better? I am having issues since my surgery in March and had to have a second surgery to repair a pseumenigocele and now have it back again. I am going for a second opinion tomorrow. I hope you are doing better. dizzy
reHi, I attended my appointment with the NS and as expected he told me that the Pseudomenigocele was normal and not to worry about it. He told me that i obviously had some sort of Neurological damage and had to learn to live with it. I have more on this story to follow.
Darren
I was wondering about your outcome at the QE. I am suffering the same symptoms. I have had a LP shunt, VP shunt, Sub templar decompression and formen magnum decompression. Still my pain is unreal, with numbness, disorientation etc.
Hi Darren. I have just got back from the QE today. i am 7 yrs post op and i too have a psuedomenicele. I last had a MRI 3 years ago which showed the peuedomeningocele had slightly enlarged. Am having another MRI in a few weeks and my surgeon says it should have decreased. I am of the thinking that a slight psuedomeningocele is ok straight after op and that the body will reabsorb the csf and it should correct itself. However this clearly has not happened with you or I and must have a significant bearing on the pain and symptoms we are feeling. Just does not make sense to say leave it and you just have to find a way to live with it- yeah great lets live a life of constant pain!
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